TY - GEN
T1 - User centered approach to the supra-functional needs of people living with amyotrophic lateral sclerosis (ALS)
AU - McDonagh, Deana
AU - Arquines, Kayla
AU - Hsiao-Wecksler, Elizabeth T.
AU - Mansouri, Mahshid
AU - Krishnan, Girish
AU - Alabed, Mohammed
AU - Zallek, Christopher M.
N1 - Publisher Copyright:
© 2021 by ASME.
PY - 2021
Y1 - 2021
N2 - User-centered design relies upon the appreciation that assistive technology device solutions need to include the functional and supra-functional (e.g., emotional, social, cultural) needs of users. Developing solutions without basing decision-making on both quantitative (functional) and qualitative (supra-functional) needs can lead to imbalanced devices, services, and/or environments. Satisfying both functional and supra-functional needs is the foundation of usercentered design, which in itself relies upon empathic understanding of the person that one is aiming to serve. This paper presents a study of the lived experiences of people living with Amyotrophic Lateral Sclerosis, their caregivers, and members of the healthcare management team from a human-centered perspective in the pursuit of pain points, deeper understanding of the emotional needs, and revelation of opportunities for improving quality of life and human experience through more user-centered design. We focus on user-centered design-thinking research tools (e.g., mood boards, journey maps, personas) to (a) understand the authentic experience of the individual in their vernacular and their terminology, and (b) to support a data rich conversation that focuses upon both functional and supra-functional needs to highlight opportunities for design interventions).
AB - User-centered design relies upon the appreciation that assistive technology device solutions need to include the functional and supra-functional (e.g., emotional, social, cultural) needs of users. Developing solutions without basing decision-making on both quantitative (functional) and qualitative (supra-functional) needs can lead to imbalanced devices, services, and/or environments. Satisfying both functional and supra-functional needs is the foundation of usercentered design, which in itself relies upon empathic understanding of the person that one is aiming to serve. This paper presents a study of the lived experiences of people living with Amyotrophic Lateral Sclerosis, their caregivers, and members of the healthcare management team from a human-centered perspective in the pursuit of pain points, deeper understanding of the emotional needs, and revelation of opportunities for improving quality of life and human experience through more user-centered design. We focus on user-centered design-thinking research tools (e.g., mood boards, journey maps, personas) to (a) understand the authentic experience of the individual in their vernacular and their terminology, and (b) to support a data rich conversation that focuses upon both functional and supra-functional needs to highlight opportunities for design interventions).
KW - ALS
KW - Emotional needs
KW - Empathy
UR - http://www.scopus.com/inward/record.url?scp=85107199674&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=85107199674&partnerID=8YFLogxK
U2 - 10.1115/DMD2021-1058
DO - 10.1115/DMD2021-1058
M3 - Conference contribution
AN - SCOPUS:85107199674
T3 - Proceedings of the 2021 Design of Medical Devices Conference, DMD 2021
BT - Proceedings of the 2021 Design of Medical Devices Conference, DMD 2021
PB - American Society of Mechanical Engineers
T2 - 2021 Design of Medical Devices Conference, DMD 2021
Y2 - 12 April 2021 through 15 April 2021
ER -