TY - JOUR
T1 - Training Parents of Youth with Autism Spectrum Disorder to Advocate for Adult Disability Services
T2 - Results from a Pilot Randomized Controlled Trial
AU - Taylor, Julie Lounds
AU - Hodapp, Robert M.
AU - Burke, Meghan M.
AU - Waitz-Kudla, Sydney N.
AU - Rabideau, Carol
N1 - Funding Information:
This research was supported by the National Institute of Mental Health (R34 MH104428, PI: Taylor), with core support from the National Institute of Child Health and Human Development (U54 HD083211, PI: Dykens) and the National Center for Advancing Translational Sciences (CTSA UL1 TR000445). The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Institutes of Health.
Publisher Copyright:
© 2017, Springer Science+Business Media New York.
PY - 2017/3/1
Y1 - 2017/3/1
N2 - This study presents findings from a pilot randomized controlled trial, testing a 12-week intervention to train parents of youth with autism spectrum disorder (ASD) to advocate for adult disability services—the Volunteer Advocacy Program-Transition (VAP-T). Participants included 41 parents of youth with ASD within 2 years of high school exit, randomly assigned to a treatment (N = 20) or wait-list control (N = 21) group. Outcomes, collected before and after the intervention, included parental knowledge about adult services, advocacy skills-comfort, and empowerment. The VAP-T had acceptable feasibility, treatment fidelity, and acceptability. After participating in the VAP-T, intervention parents (compared to controls) knew more about the adult service system, were more skilled/comfortable advocating, and felt more empowered.
AB - This study presents findings from a pilot randomized controlled trial, testing a 12-week intervention to train parents of youth with autism spectrum disorder (ASD) to advocate for adult disability services—the Volunteer Advocacy Program-Transition (VAP-T). Participants included 41 parents of youth with ASD within 2 years of high school exit, randomly assigned to a treatment (N = 20) or wait-list control (N = 21) group. Outcomes, collected before and after the intervention, included parental knowledge about adult services, advocacy skills-comfort, and empowerment. The VAP-T had acceptable feasibility, treatment fidelity, and acceptability. After participating in the VAP-T, intervention parents (compared to controls) knew more about the adult service system, were more skilled/comfortable advocating, and felt more empowered.
KW - Advocacy
KW - Autism spectrum disorder
KW - Empowerment
KW - Intervention
KW - Parents
KW - Randomized controlled trial
KW - Services
KW - Transition to adulthood
UR - http://www.scopus.com/inward/record.url?scp=85008711878&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=85008711878&partnerID=8YFLogxK
U2 - 10.1007/s10803-016-2994-z
DO - 10.1007/s10803-016-2994-z
M3 - Article
C2 - 28070786
AN - SCOPUS:85008711878
VL - 47
SP - 846
EP - 857
JO - Journal of Autism and Developmental Disorders
JF - Journal of Autism and Developmental Disorders
SN - 0162-3257
IS - 3
ER -