Training Parents of Youth with Autism Spectrum Disorder to Advocate for Adult Disability Services: Results from a Pilot Randomized Controlled Trial

Julie Lounds Taylor, Robert M. Hodapp, Meghan M. Burke, Sydney N. Waitz-Kudla, Carol Rabideau

Research output: Contribution to journalArticle

Abstract

This study presents findings from a pilot randomized controlled trial, testing a 12-week intervention to train parents of youth with autism spectrum disorder (ASD) to advocate for adult disability services—the Volunteer Advocacy Program-Transition (VAP-T). Participants included 41 parents of youth with ASD within 2 years of high school exit, randomly assigned to a treatment (N = 20) or wait-list control (N = 21) group. Outcomes, collected before and after the intervention, included parental knowledge about adult services, advocacy skills-comfort, and empowerment. The VAP-T had acceptable feasibility, treatment fidelity, and acceptability. After participating in the VAP-T, intervention parents (compared to controls) knew more about the adult service system, were more skilled/comfortable advocating, and felt more empowered.

Original languageEnglish (US)
Pages (from-to)846-857
Number of pages12
JournalJournal of Autism and Developmental Disorders
Volume47
Issue number3
DOIs
StatePublished - Mar 1 2017

Keywords

  • Advocacy
  • Autism spectrum disorder
  • Empowerment
  • Intervention
  • Parents
  • Randomized controlled trial
  • Services
  • Transition to adulthood

ASJC Scopus subject areas

  • Developmental and Educational Psychology

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