@article{09f55cf76a2c43e39951095ecefb9e4d,
title = "Theory and Practice in Participatory Research: Lessons from the Native Elder Care Study",
abstract = "Models for community-based participatory research (CBPR) urge academic investigators to collaborate with communities to identify and pursue research questions, processes, and outcomes valuable to both partners. The tribal participatory research (TPR) conceptual model suggests modifications to CBPR to fit the special needs of American Indian communities. This paper draws upon authors{\textquoteright} collaboration with one American Indian tribe to recommend theoretical revision and practical strategies for conducting gerontological research in tribal communities. We rated the TPR model as a strong, specialized adaptation of participatory research principles. Although the need for some TPR mechanisms may vary, our experience recommends incorporating dissemination as a central TPR mechanism. Researchers and communities can expect well-crafted collaborative projects to generate particular types of positive project outcomes for both partners, but should prepare for both predictable and unique challenges.",
keywords = "Aged, Minority health, CBPR, Indians, North American, TPR",
author = "Goins, {R. T.} and Garroutte, {E. M.} and Fox, {S. L.} and Geiger, {Sarah Dee} and Manson, {S. M.}",
note = "Funding Information: National Institute on Aging at National Institutes of Health (K01 AG022336 and K07 AG023641) and the University of Colorado Denver (HHS1242200400049C). Funding Information: Personnel Issues.—Employee retention presented another challenge. Of 28 interviewers hired, 12 of them failed to begin work, whereas others did not work throughout the duration of the project. The 16 interviewers who began the project worked an average of eight months, each conducting approximately 32 interviews. Retention issues were, in turn, related to control of project inventory. Despite our control procedures required all interviewers to sign and assume responsibility for equipment, including replacement of lost items; one interviewer who quit unexpectedly did not return equipment. Its recovery resulted in a substantial lost time on the part of the investigative team and required support from the On-Site Project Coordinator, the Health and Medical Division Deputy, and the tribe{\textquoteright}s legal counsel. Copyright: Copyright 2011 Elsevier B.V., All rights reserved.",
year = "2011",
month = jun,
day = "1",
doi = "10.1093/geront/gnq130",
language = "English (US)",
volume = "51",
pages = "285--294",
journal = "The Gerontologist",
issn = "0016-9013",
publisher = "Gerontological Society of America",
number = "3",
}