The perceptions of professionals toward siblings of individuals with intellectual and developmental disabilities

Meghan M. Burke, Chung eun Lee, Catherine K. Arnold, Aleksa Owen

Research output: Contribution to journalArticle

Abstract

Adult siblings of individuals with intellectual and developmental disabilities (IDD) report struggling to navigate the adult disability service delivery system and collaborate with professionals. To date, though, it is unclear how professionals encourage sibling involvement and, accordingly, the facilitators and challenges in working with siblings. For this study, 290 professionals participated in a national web-based survey; participants answered three openended questions about ways to involve siblings, positive experiences with siblings, and challenges in working with siblings. Professionals reported person-level and systems-level supports to encourage sibling involvement. Also, professionals reported enjoying working with cohesive families of individuals with IDD and witnessing the benefits that siblings bring to their brothers and sisters with IDD. Challenges in working with siblings included: lack of sibling involvement, systemic barriers, and caregiving burden. Implications for future research and practice are discussed.

Original languageEnglish (US)
Pages (from-to)72-83
Number of pages12
JournalIntellectual and developmental disabilities
Volume55
Issue number2
DOIs
StatePublished - Apr 1 2017

Keywords

  • Family
  • Intellectual and developmental disabilities
  • Professional
  • Sibling

ASJC Scopus subject areas

  • Pediatrics, Perinatology, and Child Health
  • Education
  • Developmental and Educational Psychology
  • Community and Home Care
  • Psychiatry and Mental health

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