The perceptions of professionals toward siblings of individuals with intellectual and developmental disabilities

Meghan Maureen Burke, Chung eun Lee, Catherine K. Arnold, Aleksa Owen

Research output: Contribution to journalArticle

Abstract

Adult siblings of individuals with intellectual and developmental disabilities (IDD) report struggling to navigate the adult disability service delivery system and collaborate with professionals. To date, though, it is unclear how professionals encourage sibling involvement and, accordingly, the facilitators and challenges in working with siblings. For this study, 290 professionals participated in a national web-based survey; participants answered three openended questions about ways to involve siblings, positive experiences with siblings, and challenges in working with siblings. Professionals reported person-level and systems-level supports to encourage sibling involvement. Also, professionals reported enjoying working with cohesive families of individuals with IDD and witnessing the benefits that siblings bring to their brothers and sisters with IDD. Challenges in working with siblings included: lack of sibling involvement, systemic barriers, and caregiving burden. Implications for future research and practice are discussed.

Original languageEnglish (US)
Pages (from-to)72-83
Number of pages12
JournalIntellectual and developmental disabilities
Volume55
Issue number2
DOIs
StatePublished - Apr 1 2017

Fingerprint

Developmental Disabilities
Intellectual Disability
Siblings
disability
caregiving

Keywords

  • Family
  • Intellectual and developmental disabilities
  • Professional
  • Sibling

ASJC Scopus subject areas

  • Pediatrics, Perinatology, and Child Health
  • Education
  • Developmental and Educational Psychology
  • Community and Home Care
  • Psychiatry and Mental health

Cite this

The perceptions of professionals toward siblings of individuals with intellectual and developmental disabilities. / Burke, Meghan Maureen; eun Lee, Chung; Arnold, Catherine K.; Owen, Aleksa.

In: Intellectual and developmental disabilities, Vol. 55, No. 2, 01.04.2017, p. 72-83.

Research output: Contribution to journalArticle

@article{8fc700dfe05a4d0493ce5b50684f5a62,
title = "The perceptions of professionals toward siblings of individuals with intellectual and developmental disabilities",
abstract = "Adult siblings of individuals with intellectual and developmental disabilities (IDD) report struggling to navigate the adult disability service delivery system and collaborate with professionals. To date, though, it is unclear how professionals encourage sibling involvement and, accordingly, the facilitators and challenges in working with siblings. For this study, 290 professionals participated in a national web-based survey; participants answered three openended questions about ways to involve siblings, positive experiences with siblings, and challenges in working with siblings. Professionals reported person-level and systems-level supports to encourage sibling involvement. Also, professionals reported enjoying working with cohesive families of individuals with IDD and witnessing the benefits that siblings bring to their brothers and sisters with IDD. Challenges in working with siblings included: lack of sibling involvement, systemic barriers, and caregiving burden. Implications for future research and practice are discussed.",
keywords = "Family, Intellectual and developmental disabilities, Professional, Sibling",
author = "Burke, {Meghan Maureen} and {eun Lee}, Chung and Arnold, {Catherine K.} and Aleksa Owen",
year = "2017",
month = "4",
day = "1",
doi = "10.1352/1934-9556-55.2.72",
language = "English (US)",
volume = "55",
pages = "72--83",
journal = "Intellectual and Developmental Disabilities",
issn = "1934-9491",
publisher = "American Association on Intellectual and Developmental Disabilities",
number = "2",

}

TY - JOUR

T1 - The perceptions of professionals toward siblings of individuals with intellectual and developmental disabilities

AU - Burke, Meghan Maureen

AU - eun Lee, Chung

AU - Arnold, Catherine K.

AU - Owen, Aleksa

PY - 2017/4/1

Y1 - 2017/4/1

N2 - Adult siblings of individuals with intellectual and developmental disabilities (IDD) report struggling to navigate the adult disability service delivery system and collaborate with professionals. To date, though, it is unclear how professionals encourage sibling involvement and, accordingly, the facilitators and challenges in working with siblings. For this study, 290 professionals participated in a national web-based survey; participants answered three openended questions about ways to involve siblings, positive experiences with siblings, and challenges in working with siblings. Professionals reported person-level and systems-level supports to encourage sibling involvement. Also, professionals reported enjoying working with cohesive families of individuals with IDD and witnessing the benefits that siblings bring to their brothers and sisters with IDD. Challenges in working with siblings included: lack of sibling involvement, systemic barriers, and caregiving burden. Implications for future research and practice are discussed.

AB - Adult siblings of individuals with intellectual and developmental disabilities (IDD) report struggling to navigate the adult disability service delivery system and collaborate with professionals. To date, though, it is unclear how professionals encourage sibling involvement and, accordingly, the facilitators and challenges in working with siblings. For this study, 290 professionals participated in a national web-based survey; participants answered three openended questions about ways to involve siblings, positive experiences with siblings, and challenges in working with siblings. Professionals reported person-level and systems-level supports to encourage sibling involvement. Also, professionals reported enjoying working with cohesive families of individuals with IDD and witnessing the benefits that siblings bring to their brothers and sisters with IDD. Challenges in working with siblings included: lack of sibling involvement, systemic barriers, and caregiving burden. Implications for future research and practice are discussed.

KW - Family

KW - Intellectual and developmental disabilities

KW - Professional

KW - Sibling

UR - http://www.scopus.com/inward/record.url?scp=85020374581&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=85020374581&partnerID=8YFLogxK

U2 - 10.1352/1934-9556-55.2.72

DO - 10.1352/1934-9556-55.2.72

M3 - Article

C2 - 28375796

AN - SCOPUS:85020374581

VL - 55

SP - 72

EP - 83

JO - Intellectual and Developmental Disabilities

JF - Intellectual and Developmental Disabilities

SN - 1934-9491

IS - 2

ER -