Sources of Caregiving Burden in Middle-Aged and Older Latino Caregivers

Guilherme Moraes Balbim, Melissa Magallanes, Isabela Gouveia Marques, Karen Ciruelas, Susan Aguiñaga, Jacqueline Guzman, David Xavier Marquez

Research output: Contribution to journalArticlepeer-review

Abstract

Objective: We aimed to identify sources of caregiver burden in middle-aged and older Latino caregivers of people with Alzheimer disease and related dementia (ADRD). Methods: Participants were recruited through an agreement with the Rush Alzheimer’s Disease Center Clinic Data Repository. We conducted semistructured interviews with 16 middle-aged and older Latinos who were the primary caregiver for a family member diagnosed with ADRD. The interview guide consisted of questions and probes to capture participants’ perceptions of family caregiving. Direct content analysis was performed. Results: Participants were aged 50 to 75 years (n = 16) and a majority female (n = 12). The sources of burden identified were (1) caregiver responsibilities, (2) caregiving-related health decline, (3) lack of support, (4) financial status, (5) vigilance, and (6) concerns about the future. Conclusions: The influence of gender roles seemed to play a role in caregivers’ perceptions of sources of burden, especially on caregiver responsibilities and perceptions of lack of support. Latinos cultural values such as familismo and marianismo likely reinforced gender disparities in family caregiving.

Original languageEnglish (US)
Pages (from-to)185-194
Number of pages10
JournalJournal of Geriatric Psychiatry and Neurology
Volume33
Issue number4
DOIs
StatePublished - Jul 1 2020

Keywords

  • Alzheimer's disease and related dementias
  • Caregiving
  • Latinos
  • burden

ASJC Scopus subject areas

  • Clinical Neurology
  • Geriatrics and Gerontology
  • Psychiatry and Mental health

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