TY - JOUR
T1 - Sources of Caregiving Burden in Middle-Aged and Older Latino Caregivers
AU - Balbim, Guilherme Moraes
AU - Magallanes, Melissa
AU - Marques, Isabela Gouveia
AU - Ciruelas, Karen
AU - Aguiñaga, Susan
AU - Guzman, Jacqueline
AU - Marquez, David Xavier
N1 - Funding Information:
The author(s) disclosed receipt of the following financial support for the research: The authors received financial support from the Department of Kinesiology and Nutrition (University of Illinois at Chicago) for the research, authorship, and/or publication of this article.
Publisher Copyright:
© The Author(s) 2019.
PY - 2020/7/1
Y1 - 2020/7/1
N2 - Objective: We aimed to identify sources of caregiver burden in middle-aged and older Latino caregivers of people with Alzheimer disease and related dementia (ADRD). Methods: Participants were recruited through an agreement with the Rush Alzheimer’s Disease Center Clinic Data Repository. We conducted semistructured interviews with 16 middle-aged and older Latinos who were the primary caregiver for a family member diagnosed with ADRD. The interview guide consisted of questions and probes to capture participants’ perceptions of family caregiving. Direct content analysis was performed. Results: Participants were aged 50 to 75 years (n = 16) and a majority female (n = 12). The sources of burden identified were (1) caregiver responsibilities, (2) caregiving-related health decline, (3) lack of support, (4) financial status, (5) vigilance, and (6) concerns about the future. Conclusions: The influence of gender roles seemed to play a role in caregivers’ perceptions of sources of burden, especially on caregiver responsibilities and perceptions of lack of support. Latinos cultural values such as familismo and marianismo likely reinforced gender disparities in family caregiving.
AB - Objective: We aimed to identify sources of caregiver burden in middle-aged and older Latino caregivers of people with Alzheimer disease and related dementia (ADRD). Methods: Participants were recruited through an agreement with the Rush Alzheimer’s Disease Center Clinic Data Repository. We conducted semistructured interviews with 16 middle-aged and older Latinos who were the primary caregiver for a family member diagnosed with ADRD. The interview guide consisted of questions and probes to capture participants’ perceptions of family caregiving. Direct content analysis was performed. Results: Participants were aged 50 to 75 years (n = 16) and a majority female (n = 12). The sources of burden identified were (1) caregiver responsibilities, (2) caregiving-related health decline, (3) lack of support, (4) financial status, (5) vigilance, and (6) concerns about the future. Conclusions: The influence of gender roles seemed to play a role in caregivers’ perceptions of sources of burden, especially on caregiver responsibilities and perceptions of lack of support. Latinos cultural values such as familismo and marianismo likely reinforced gender disparities in family caregiving.
KW - Alzheimer's disease and related dementias
KW - Caregiving
KW - Latinos
KW - burden
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U2 - 10.1177/0891988719874119
DO - 10.1177/0891988719874119
M3 - Article
C2 - 31510848
AN - SCOPUS:85073823117
VL - 33
SP - 185
EP - 194
JO - Journal of Geriatric Psychiatry and Neurology
JF - Journal of Geriatric Psychiatry and Neurology
SN - 0891-9887
IS - 4
ER -