Predictors of future caregiving by adult siblings of individuals with intellectual and developmental disabilities

Meghan M. Burke, Julie Lounds Taylor, Richard Urbano, Robert M. Hodapp

Research output: Contribution to journalArticlepeer-review

Abstract

With the growing life expectancy for individuals with intellectual and developmental disabilities, siblings will increasingly assume responsibility for the care of their brother or sister with intellectual and developmental disabilities. Using a 163-item survey completed by 757 siblings, the authors identified factors related to future caregiving expectations. Siblings expected to assume greater caregiving responsibility for their brother or sister with disabilities if they were female, had closer relationships with and lived closer to their brother or sister with intellectual and developmental disabilities, and were the lone sibling without a disability. Siblings who expected to assume higher levels of caregiving had parents who were currently more able to care for their brother or sister with disabilities. With a better understanding of who intends to fulfill future caregiving roles, support can be provided to these siblings.

Original languageEnglish (US)
Pages (from-to)33-47
Number of pages15
JournalAmerican journal on intellectual and developmental disabilities
Volume117
Issue number1
DOIs
StatePublished - Jan 2012
Externally publishedYes

Keywords

  • Caregiving
  • Intellectual disability
  • Sibling

ASJC Scopus subject areas

  • Clinical Neurology
  • Pediatrics, Perinatology, and Child Health
  • Psychiatry and Mental health
  • Developmental and Educational Psychology
  • Neuropsychology and Physiological Psychology
  • Arts and Humanities (miscellaneous)

Fingerprint Dive into the research topics of 'Predictors of future caregiving by adult siblings of individuals with intellectual and developmental disabilities'. Together they form a unique fingerprint.

Cite this