‘Move it or lose it’

Perceptions of the impact of physical activity on multiple sclerosis symptoms, relapse and disability identity

Brynn C. Adamson, Matthew D. Adamson, Melissa Monique Littlefield, Robert W. Motl

Research output: Contribution to journalArticle

Abstract

This study explores the roles which individuals with multiple sclerosis (MS) ascribe to physical activity (PA). PA is becoming more heavily promoted by health care providers to individuals with MS due to the evidence of improved health outcomes with PA participation. However, there are possible negative outcomes with the medicalisation of PA (e.g. increased guilt over inactivity, constrained views of PA) that may be compounded by the uncertain nature of having MS and negotiating a disabled identity. Framing disability and impairment within a social-relational model of disability, we undertook an interpretative phenomenological analysis (IPA) of 15 semi-structured interviews conducted among adults with MS who had recently experienced a relapse. Our purpose was to understand how persons with MS describe the roles of PA and exercise as part of daily life with MS, relapses and disability identity. Our analysis indicated that PA occupies several roles related to MS and relapse. These roles were categorised into three main themes: PA has a paradoxical role in MS relapse; PA has a role in guilt and empowerment; and PA as defiance of disability. The roles that exercise/PA take may inform the negotiation of disability identity for individuals with MS by providing ambiguous control ‘over’ MS relapses and over impairment/disability. When not engaging in PA, our participants described feelings of guilt, worrying that increased impairment/disability would be their ‘fault.’ Because of this, PA should be promoted carefully as it occupies many important and sometimes conflicting roles in the life of an individual with MS.

Original languageEnglish (US)
Pages (from-to)457-475
Number of pages19
JournalQualitative Research in Sport, Exercise and Health
Volume10
Issue number4
DOIs
StatePublished - Jan 1 2018

Fingerprint

multiple sclerosis
relapse
Multiple Sclerosis
disability
Exercise
Recurrence
guilt
Guilt
Negotiating
physical exercise
Medicalization
medicalization
empowerment

Keywords

  • Disability identity
  • Exercise
  • Medicalisation
  • Multiple sclerosis
  • Relapse

ASJC Scopus subject areas

  • Social Psychology
  • Health(social science)
  • Physical Therapy, Sports Therapy and Rehabilitation

Cite this

‘Move it or lose it’ : Perceptions of the impact of physical activity on multiple sclerosis symptoms, relapse and disability identity. / Adamson, Brynn C.; Adamson, Matthew D.; Littlefield, Melissa Monique; Motl, Robert W.

In: Qualitative Research in Sport, Exercise and Health, Vol. 10, No. 4, 01.01.2018, p. 457-475.

Research output: Contribution to journalArticle

@article{4c5a41f9908f423690dd9940a76eae95,
title = "‘Move it or lose it’: Perceptions of the impact of physical activity on multiple sclerosis symptoms, relapse and disability identity",
abstract = "This study explores the roles which individuals with multiple sclerosis (MS) ascribe to physical activity (PA). PA is becoming more heavily promoted by health care providers to individuals with MS due to the evidence of improved health outcomes with PA participation. However, there are possible negative outcomes with the medicalisation of PA (e.g. increased guilt over inactivity, constrained views of PA) that may be compounded by the uncertain nature of having MS and negotiating a disabled identity. Framing disability and impairment within a social-relational model of disability, we undertook an interpretative phenomenological analysis (IPA) of 15 semi-structured interviews conducted among adults with MS who had recently experienced a relapse. Our purpose was to understand how persons with MS describe the roles of PA and exercise as part of daily life with MS, relapses and disability identity. Our analysis indicated that PA occupies several roles related to MS and relapse. These roles were categorised into three main themes: PA has a paradoxical role in MS relapse; PA has a role in guilt and empowerment; and PA as defiance of disability. The roles that exercise/PA take may inform the negotiation of disability identity for individuals with MS by providing ambiguous control ‘over’ MS relapses and over impairment/disability. When not engaging in PA, our participants described feelings of guilt, worrying that increased impairment/disability would be their ‘fault.’ Because of this, PA should be promoted carefully as it occupies many important and sometimes conflicting roles in the life of an individual with MS.",
keywords = "Disability identity, Exercise, Medicalisation, Multiple sclerosis, Relapse",
author = "Adamson, {Brynn C.} and Adamson, {Matthew D.} and Littlefield, {Melissa Monique} and Motl, {Robert W.}",
year = "2018",
month = "1",
day = "1",
doi = "10.1080/2159676X.2017.1415221",
language = "English (US)",
volume = "10",
pages = "457--475",
journal = "Qualitative Research in Sport and Exercise",
issn = "1939-8441",
publisher = "Taylor and Francis Ltd.",
number = "4",

}

TY - JOUR

T1 - ‘Move it or lose it’

T2 - Perceptions of the impact of physical activity on multiple sclerosis symptoms, relapse and disability identity

AU - Adamson, Brynn C.

AU - Adamson, Matthew D.

AU - Littlefield, Melissa Monique

AU - Motl, Robert W.

PY - 2018/1/1

Y1 - 2018/1/1

N2 - This study explores the roles which individuals with multiple sclerosis (MS) ascribe to physical activity (PA). PA is becoming more heavily promoted by health care providers to individuals with MS due to the evidence of improved health outcomes with PA participation. However, there are possible negative outcomes with the medicalisation of PA (e.g. increased guilt over inactivity, constrained views of PA) that may be compounded by the uncertain nature of having MS and negotiating a disabled identity. Framing disability and impairment within a social-relational model of disability, we undertook an interpretative phenomenological analysis (IPA) of 15 semi-structured interviews conducted among adults with MS who had recently experienced a relapse. Our purpose was to understand how persons with MS describe the roles of PA and exercise as part of daily life with MS, relapses and disability identity. Our analysis indicated that PA occupies several roles related to MS and relapse. These roles were categorised into three main themes: PA has a paradoxical role in MS relapse; PA has a role in guilt and empowerment; and PA as defiance of disability. The roles that exercise/PA take may inform the negotiation of disability identity for individuals with MS by providing ambiguous control ‘over’ MS relapses and over impairment/disability. When not engaging in PA, our participants described feelings of guilt, worrying that increased impairment/disability would be their ‘fault.’ Because of this, PA should be promoted carefully as it occupies many important and sometimes conflicting roles in the life of an individual with MS.

AB - This study explores the roles which individuals with multiple sclerosis (MS) ascribe to physical activity (PA). PA is becoming more heavily promoted by health care providers to individuals with MS due to the evidence of improved health outcomes with PA participation. However, there are possible negative outcomes with the medicalisation of PA (e.g. increased guilt over inactivity, constrained views of PA) that may be compounded by the uncertain nature of having MS and negotiating a disabled identity. Framing disability and impairment within a social-relational model of disability, we undertook an interpretative phenomenological analysis (IPA) of 15 semi-structured interviews conducted among adults with MS who had recently experienced a relapse. Our purpose was to understand how persons with MS describe the roles of PA and exercise as part of daily life with MS, relapses and disability identity. Our analysis indicated that PA occupies several roles related to MS and relapse. These roles were categorised into three main themes: PA has a paradoxical role in MS relapse; PA has a role in guilt and empowerment; and PA as defiance of disability. The roles that exercise/PA take may inform the negotiation of disability identity for individuals with MS by providing ambiguous control ‘over’ MS relapses and over impairment/disability. When not engaging in PA, our participants described feelings of guilt, worrying that increased impairment/disability would be their ‘fault.’ Because of this, PA should be promoted carefully as it occupies many important and sometimes conflicting roles in the life of an individual with MS.

KW - Disability identity

KW - Exercise

KW - Medicalisation

KW - Multiple sclerosis

KW - Relapse

UR - http://www.scopus.com/inward/record.url?scp=85039552315&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=85039552315&partnerID=8YFLogxK

U2 - 10.1080/2159676X.2017.1415221

DO - 10.1080/2159676X.2017.1415221

M3 - Article

VL - 10

SP - 457

EP - 475

JO - Qualitative Research in Sport and Exercise

JF - Qualitative Research in Sport and Exercise

SN - 1939-8441

IS - 4

ER -