Mothers' Perceptions of Their NICU Experience 1 and 7 Months After Discharge

Interviews were conducted with 36 mothers of premature infants to assess their perceptions and satisfaction with their infants' care 1 and 7 months after discharge from the NICU. The extent to which mothers received information that assisted them in caring for their infant at home also was assessed. In general, nearly all mothers reported receiving information related to their baby's health and routine care of their baby, such as bathing and feeding. In contrast, many reported not receiving information about developmental issues or on topics such as transfer of medical records and payment for the hospitalization. Results suggest that parents have informational needs that may not be met through traditional discharge teaching. Recommendations for meeting these needs through an individualized transition planner are provided.