Lessons Learned From Research Collaboration Among People With and Without Developmental Disabilities

Julianna H. Kim, Oscar E. Hughes, Sarah A. Demissie, Timothy J. Kunzier, W. Catherine Cheung, Edwin C. Monarrez, Meghan M. Burke, Zach Rossetti

Research output: Contribution to journalArticlepeer-review


Research related to the developmental disability (DD) community should include collaboration with individuals with DD. Unfortunately, people with DD are infrequently involved in research projects in meaningful ways, and there is little guidance about how to collaborate equitably with researchers with DD. The purpose of this article is to share lessons learned from a collaborative research study among researchers with and without DD using both qualitative and quantitative methods to develop and examine the effectiveness of a civic engagement intervention for transition-aged youth with disabilities. It includes how our research team compensated researchers with DD, clarified team member roles, leveraged the expertise of researchers with DD in using both qualitative and quantitative methods, and integrated technology throughout the research process.

Original languageEnglish (US)
Pages (from-to)405-415
Number of pages11
JournalIntellectual and developmental disabilities
Issue number5
StatePublished - Oct 2022


  • developmental disabilities
  • intellectual disability
  • research collaboration

ASJC Scopus subject areas

  • General Medicine


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