Individual, parent and social-environmental correlates of caregiving experiences among parents of adults with autism spectrum disorder

Research output: Contribution to journalArticle

Abstract

Introduction: Compared to parents of adults with other types of disabilities, parents of adults with autism spectrum disorder (ASD) experience worse well-being. Thus, it is crucial to identify the individual, parent and social-environmental correlates of caregiving experiences among parents of adults with ASD. Method: For this study, 130 parents of adults with ASD responded to a survey about caregiving satisfaction, self-efficacy and burden. Results: Greater future planning and community involvement related to more caregiving satisfaction and increased caregiving self-efficacy, respectively. Less choicemaking of the adult with ASD related to greater caregiving satisfaction and self-efficacy. Maladaptive behaviours and poor health of the adult with ASD related to greater caregiving burden. Conclusions: Implications for policymakers, practitioners and future research are discussed.

Original languageEnglish (US)
Pages (from-to)401-411
Number of pages11
JournalJournal of Intellectual Disability Research
Volume60
Issue number5
DOIs
StatePublished - May 1 2016

Fingerprint

Self Efficacy
Autism Spectrum Disorder
Caregiving
Autism Spectrum Disorders
Health
Self-efficacy
Burden

Keywords

  • Adult children
  • Autism
  • Burden
  • Caregiving
  • Satisfaction
  • Self-efficacy

ASJC Scopus subject areas

  • Rehabilitation
  • Arts and Humanities (miscellaneous)
  • Neurology
  • Clinical Neurology
  • Psychiatry and Mental health

Cite this

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abstract = "Introduction: Compared to parents of adults with other types of disabilities, parents of adults with autism spectrum disorder (ASD) experience worse well-being. Thus, it is crucial to identify the individual, parent and social-environmental correlates of caregiving experiences among parents of adults with ASD. Method: For this study, 130 parents of adults with ASD responded to a survey about caregiving satisfaction, self-efficacy and burden. Results: Greater future planning and community involvement related to more caregiving satisfaction and increased caregiving self-efficacy, respectively. Less choicemaking of the adult with ASD related to greater caregiving satisfaction and self-efficacy. Maladaptive behaviours and poor health of the adult with ASD related to greater caregiving burden. Conclusions: Implications for policymakers, practitioners and future research are discussed.",
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N2 - Introduction: Compared to parents of adults with other types of disabilities, parents of adults with autism spectrum disorder (ASD) experience worse well-being. Thus, it is crucial to identify the individual, parent and social-environmental correlates of caregiving experiences among parents of adults with ASD. Method: For this study, 130 parents of adults with ASD responded to a survey about caregiving satisfaction, self-efficacy and burden. Results: Greater future planning and community involvement related to more caregiving satisfaction and increased caregiving self-efficacy, respectively. Less choicemaking of the adult with ASD related to greater caregiving satisfaction and self-efficacy. Maladaptive behaviours and poor health of the adult with ASD related to greater caregiving burden. Conclusions: Implications for policymakers, practitioners and future research are discussed.

AB - Introduction: Compared to parents of adults with other types of disabilities, parents of adults with autism spectrum disorder (ASD) experience worse well-being. Thus, it is crucial to identify the individual, parent and social-environmental correlates of caregiving experiences among parents of adults with ASD. Method: For this study, 130 parents of adults with ASD responded to a survey about caregiving satisfaction, self-efficacy and burden. Results: Greater future planning and community involvement related to more caregiving satisfaction and increased caregiving self-efficacy, respectively. Less choicemaking of the adult with ASD related to greater caregiving satisfaction and self-efficacy. Maladaptive behaviours and poor health of the adult with ASD related to greater caregiving burden. Conclusions: Implications for policymakers, practitioners and future research are discussed.

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