TY - JOUR
T1 - Healthcare and Rehabilitation Needs of Individuals with Multiple Sclerosis
AU - Kinyanjui, Benson
AU - McDaniels, Bradley
AU - Frain, Michael
AU - Chiu, Chung-Yi
AU - Lee, Beatrice
AU - Tiro, Lebogang
PY - 2018
Y1 - 2018
N2 - There is little research delineating the healthcare and rehabilitation needs of individuals with multiple sclerosis (MS) that is based on the perspectives of those individuals themselves. The medical community is largely well-informed about disease progression, symptoms, and treatment of MS, but little is known regarding the barriers and unmet needs that individuals with MS experience in their interaction with healthcare and rehabilitation systems and providers, and in their efforts to maintain healthy, productive, and participatory lives. In this article, we provide a comprehensive summary of the most frequently identified healthcare and rehabilitation needs of individuals with MS based on a review of over 500 articles, from which 29 articles were selected for inclusion as they specifically addressed the needs or unmet healthcare and rehabilitation needs of people with MS. Based on our review, we identified 11 categories of needs, which we discuss in the context of three broad categories, including (a) emotional and psychological support, (b) healthcare and rehabilitation, and (c) transportation, home care, and financial needs.
AB - There is little research delineating the healthcare and rehabilitation needs of individuals with multiple sclerosis (MS) that is based on the perspectives of those individuals themselves. The medical community is largely well-informed about disease progression, symptoms, and treatment of MS, but little is known regarding the barriers and unmet needs that individuals with MS experience in their interaction with healthcare and rehabilitation systems and providers, and in their efforts to maintain healthy, productive, and participatory lives. In this article, we provide a comprehensive summary of the most frequently identified healthcare and rehabilitation needs of individuals with MS based on a review of over 500 articles, from which 29 articles were selected for inclusion as they specifically addressed the needs or unmet healthcare and rehabilitation needs of people with MS. Based on our review, we identified 11 categories of needs, which we discuss in the context of three broad categories, including (a) emotional and psychological support, (b) healthcare and rehabilitation, and (c) transportation, home care, and financial needs.
KW - multiple sclerosis
KW - expectations
KW - needs
KW - priorities
KW - health care
U2 - 10.51734/crdr.v1i1.29
DO - 10.51734/crdr.v1i1.29
M3 - Article
SN - 2475-9600
VL - 1
JO - Contemporary Research in Disability and Rehabilitation
JF - Contemporary Research in Disability and Rehabilitation
IS - 1
ER -