Getting by with a little help from my friends: siblings report on the amount of informal support received by adults with disabilities

K. A. Sanderson, Meghan Maureen Burke, R. C. Urbano, C. K. Arnold, R. M. Hodapp

Research output: Contribution to journalArticle

Abstract

Background: Given decreased formal supports for adults with intellectual and developmental disabilities (IDDs) in many industrialised countries, we need to know more about informal, or natural, supports. Method: Adult siblings (N = 632) responded to a web-based survey about the informal supports received by their brothers/sisters with IDDs. Results: Informal support was organised by the life domains of recreation, employment and housing. Adults with IDDs received the most extensive informal support in recreation and the least extensive in housing; low levels characterised all domains. Individuals with greater numbers of supporters in a domain experienced higher levels of support, as did those residing with family and who received more state-supported, formal benefits. Conclusions: Unpaid, informal supports supplement the support needs of adults with IDDs. Connections between formal and informal supports for adults with IDDs need to be examined further.

Original languageEnglish (US)
Pages (from-to)1097-1110
Number of pages14
JournalJournal of Intellectual Disability Research
Volume63
Issue number9
DOIs
StatePublished - Jan 1 2019

Fingerprint

Developmental Disabilities
Intellectual Disability
Siblings
Recreation
Developed Countries

Keywords

  • employment
  • formal supports
  • housing
  • informal supports
  • intellectual and developmental disabilities (IDDs)
  • recreation

ASJC Scopus subject areas

  • Rehabilitation
  • Arts and Humanities (miscellaneous)
  • Neurology
  • Clinical Neurology
  • Psychiatry and Mental health

Cite this

Getting by with a little help from my friends : siblings report on the amount of informal support received by adults with disabilities. / Sanderson, K. A.; Burke, Meghan Maureen; Urbano, R. C.; Arnold, C. K.; Hodapp, R. M.

In: Journal of Intellectual Disability Research, Vol. 63, No. 9, 01.01.2019, p. 1097-1110.

Research output: Contribution to journalArticle

@article{581b28c824ba4f18b9a33989284b93e9,
title = "Getting by with a little help from my friends: siblings report on the amount of informal support received by adults with disabilities",
abstract = "Background: Given decreased formal supports for adults with intellectual and developmental disabilities (IDDs) in many industrialised countries, we need to know more about informal, or natural, supports. Method: Adult siblings (N = 632) responded to a web-based survey about the informal supports received by their brothers/sisters with IDDs. Results: Informal support was organised by the life domains of recreation, employment and housing. Adults with IDDs received the most extensive informal support in recreation and the least extensive in housing; low levels characterised all domains. Individuals with greater numbers of supporters in a domain experienced higher levels of support, as did those residing with family and who received more state-supported, formal benefits. Conclusions: Unpaid, informal supports supplement the support needs of adults with IDDs. Connections between formal and informal supports for adults with IDDs need to be examined further.",
keywords = "employment, formal supports, housing, informal supports, intellectual and developmental disabilities (IDDs), recreation",
author = "Sanderson, {K. A.} and Burke, {Meghan Maureen} and Urbano, {R. C.} and Arnold, {C. K.} and Hodapp, {R. M.}",
year = "2019",
month = "1",
day = "1",
doi = "10.1111/jir.12622",
language = "English (US)",
volume = "63",
pages = "1097--1110",
journal = "Journal of Intellectual Disability Research",
issn = "0964-2633",
publisher = "Wiley-Blackwell",
number = "9",

}

TY - JOUR

T1 - Getting by with a little help from my friends

T2 - siblings report on the amount of informal support received by adults with disabilities

AU - Sanderson, K. A.

AU - Burke, Meghan Maureen

AU - Urbano, R. C.

AU - Arnold, C. K.

AU - Hodapp, R. M.

PY - 2019/1/1

Y1 - 2019/1/1

N2 - Background: Given decreased formal supports for adults with intellectual and developmental disabilities (IDDs) in many industrialised countries, we need to know more about informal, or natural, supports. Method: Adult siblings (N = 632) responded to a web-based survey about the informal supports received by their brothers/sisters with IDDs. Results: Informal support was organised by the life domains of recreation, employment and housing. Adults with IDDs received the most extensive informal support in recreation and the least extensive in housing; low levels characterised all domains. Individuals with greater numbers of supporters in a domain experienced higher levels of support, as did those residing with family and who received more state-supported, formal benefits. Conclusions: Unpaid, informal supports supplement the support needs of adults with IDDs. Connections between formal and informal supports for adults with IDDs need to be examined further.

AB - Background: Given decreased formal supports for adults with intellectual and developmental disabilities (IDDs) in many industrialised countries, we need to know more about informal, or natural, supports. Method: Adult siblings (N = 632) responded to a web-based survey about the informal supports received by their brothers/sisters with IDDs. Results: Informal support was organised by the life domains of recreation, employment and housing. Adults with IDDs received the most extensive informal support in recreation and the least extensive in housing; low levels characterised all domains. Individuals with greater numbers of supporters in a domain experienced higher levels of support, as did those residing with family and who received more state-supported, formal benefits. Conclusions: Unpaid, informal supports supplement the support needs of adults with IDDs. Connections between formal and informal supports for adults with IDDs need to be examined further.

KW - employment

KW - formal supports

KW - housing

KW - informal supports

KW - intellectual and developmental disabilities (IDDs)

KW - recreation

UR - http://www.scopus.com/inward/record.url?scp=85065157344&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=85065157344&partnerID=8YFLogxK

U2 - 10.1111/jir.12622

DO - 10.1111/jir.12622

M3 - Article

C2 - 31037774

AN - SCOPUS:85065157344

VL - 63

SP - 1097

EP - 1110

JO - Journal of Intellectual Disability Research

JF - Journal of Intellectual Disability Research

SN - 0964-2633

IS - 9

ER -