Getting by with a little help from my friends: siblings report on the amount of informal support received by adults with disabilities

K. A. Sanderson, M. M. Burke, R. C. Urbano, C. K. Arnold, R. M. Hodapp

Research output: Contribution to journalArticle

Abstract

Background: Given decreased formal supports for adults with intellectual and developmental disabilities (IDDs) in many industrialised countries, we need to know more about informal, or natural, supports. Method: Adult siblings (N = 632) responded to a web-based survey about the informal supports received by their brothers/sisters with IDDs. Results: Informal support was organised by the life domains of recreation, employment and housing. Adults with IDDs received the most extensive informal support in recreation and the least extensive in housing; low levels characterised all domains. Individuals with greater numbers of supporters in a domain experienced higher levels of support, as did those residing with family and who received more state-supported, formal benefits. Conclusions: Unpaid, informal supports supplement the support needs of adults with IDDs. Connections between formal and informal supports for adults with IDDs need to be examined further.

Original languageEnglish (US)
Pages (from-to)1097-1110
Number of pages14
JournalJournal of Intellectual Disability Research
Volume63
Issue number9
DOIs
StatePublished - Sep 2019

Keywords

  • employment
  • formal supports
  • housing
  • informal supports
  • intellectual and developmental disabilities (IDDs)
  • recreation

ASJC Scopus subject areas

  • Rehabilitation
  • Arts and Humanities (miscellaneous)
  • Neurology
  • Clinical Neurology
  • Psychiatry and Mental health

Fingerprint Dive into the research topics of 'Getting by with a little help from my friends: siblings report on the amount of informal support received by adults with disabilities'. Together they form a unique fingerprint.

  • Cite this