Examining the Relation Between Disability Severity Among Older Adults with Disabilities and Sibling Caregiving

Chung eun Lee, Meghan M. Burke, Catherine K. Arnold

Research output: Contribution to journalArticle

Abstract

Given the longer lives of individuals with disabilities and the increasing likelihood of siblings fulfilling family caregiving roles, it is critical to identify correlates of sibling caregiving. Yet, little research has examined the relation between the severity of the disability and sibling caregiving. The purpose of this study was to understand the relation between the severity of the disability (defined as functional ability and maladaptive behaviors) and sibling caregiving, including advocacy and future planning. Adult siblings of older individuals with disabilities (N = 141) completed a national survey. Results indicated that individuals with less functional ability were significantly more likely to receive greater sibling caregiving, advocacy, and future planning. There was a nonlinear relation with respect to sibling caregiving and functional ability with individuals with severe disabilities requiring disproportionately greater sibling caregiving. Furthermore, there was a nonlinear relation between maladaptive behaviors and caregiving demands such that siblings of individuals with the greatest asocial behaviors reported significantly greater caregiving demands.

Original languageEnglish (US)
Pages (from-to)224-236
Number of pages13
JournalResearch and Practice for Persons with Severe Disabilities
Volume44
Issue number4
DOIs
StatePublished - Dec 1 2019

Fingerprint

Siblings
Aptitude
Research

Keywords

  • functional ability
  • maladaptive behaviors
  • severe disabilities
  • sibling caregiving

ASJC Scopus subject areas

  • Social Psychology
  • Health Professions(all)
  • Public Health, Environmental and Occupational Health

Cite this

Examining the Relation Between Disability Severity Among Older Adults with Disabilities and Sibling Caregiving. / Lee, Chung eun; Burke, Meghan M.; Arnold, Catherine K.

In: Research and Practice for Persons with Severe Disabilities, Vol. 44, No. 4, 01.12.2019, p. 224-236.

Research output: Contribution to journalArticle

@article{96f02a2225904fa6b121f883081820d0,
title = "Examining the Relation Between Disability Severity Among Older Adults with Disabilities and Sibling Caregiving",
abstract = "Given the longer lives of individuals with disabilities and the increasing likelihood of siblings fulfilling family caregiving roles, it is critical to identify correlates of sibling caregiving. Yet, little research has examined the relation between the severity of the disability and sibling caregiving. The purpose of this study was to understand the relation between the severity of the disability (defined as functional ability and maladaptive behaviors) and sibling caregiving, including advocacy and future planning. Adult siblings of older individuals with disabilities (N = 141) completed a national survey. Results indicated that individuals with less functional ability were significantly more likely to receive greater sibling caregiving, advocacy, and future planning. There was a nonlinear relation with respect to sibling caregiving and functional ability with individuals with severe disabilities requiring disproportionately greater sibling caregiving. Furthermore, there was a nonlinear relation between maladaptive behaviors and caregiving demands such that siblings of individuals with the greatest asocial behaviors reported significantly greater caregiving demands.",
keywords = "functional ability, maladaptive behaviors, severe disabilities, sibling caregiving",
author = "Lee, {Chung eun} and Burke, {Meghan M.} and Arnold, {Catherine K.}",
year = "2019",
month = "12",
day = "1",
doi = "10.1177/1540796919879102",
language = "English (US)",
volume = "44",
pages = "224--236",
journal = "Research and Practice for Persons with Severe Disabilities",
issn = "1540-7969",
publisher = "Association for Persons with Severe Handicaps",
number = "4",

}

TY - JOUR

T1 - Examining the Relation Between Disability Severity Among Older Adults with Disabilities and Sibling Caregiving

AU - Lee, Chung eun

AU - Burke, Meghan M.

AU - Arnold, Catherine K.

PY - 2019/12/1

Y1 - 2019/12/1

N2 - Given the longer lives of individuals with disabilities and the increasing likelihood of siblings fulfilling family caregiving roles, it is critical to identify correlates of sibling caregiving. Yet, little research has examined the relation between the severity of the disability and sibling caregiving. The purpose of this study was to understand the relation between the severity of the disability (defined as functional ability and maladaptive behaviors) and sibling caregiving, including advocacy and future planning. Adult siblings of older individuals with disabilities (N = 141) completed a national survey. Results indicated that individuals with less functional ability were significantly more likely to receive greater sibling caregiving, advocacy, and future planning. There was a nonlinear relation with respect to sibling caregiving and functional ability with individuals with severe disabilities requiring disproportionately greater sibling caregiving. Furthermore, there was a nonlinear relation between maladaptive behaviors and caregiving demands such that siblings of individuals with the greatest asocial behaviors reported significantly greater caregiving demands.

AB - Given the longer lives of individuals with disabilities and the increasing likelihood of siblings fulfilling family caregiving roles, it is critical to identify correlates of sibling caregiving. Yet, little research has examined the relation between the severity of the disability and sibling caregiving. The purpose of this study was to understand the relation between the severity of the disability (defined as functional ability and maladaptive behaviors) and sibling caregiving, including advocacy and future planning. Adult siblings of older individuals with disabilities (N = 141) completed a national survey. Results indicated that individuals with less functional ability were significantly more likely to receive greater sibling caregiving, advocacy, and future planning. There was a nonlinear relation with respect to sibling caregiving and functional ability with individuals with severe disabilities requiring disproportionately greater sibling caregiving. Furthermore, there was a nonlinear relation between maladaptive behaviors and caregiving demands such that siblings of individuals with the greatest asocial behaviors reported significantly greater caregiving demands.

KW - functional ability

KW - maladaptive behaviors

KW - severe disabilities

KW - sibling caregiving

UR - http://www.scopus.com/inward/record.url?scp=85074053760&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=85074053760&partnerID=8YFLogxK

U2 - 10.1177/1540796919879102

DO - 10.1177/1540796919879102

M3 - Article

AN - SCOPUS:85074053760

VL - 44

SP - 224

EP - 236

JO - Research and Practice for Persons with Severe Disabilities

JF - Research and Practice for Persons with Severe Disabilities

SN - 1540-7969

IS - 4

ER -