Abstract
Given the longer lives of individuals with disabilities and the increasing likelihood of siblings fulfilling family caregiving roles, it is critical to identify correlates of sibling caregiving. Yet, little research has examined the relation between the severity of the disability and sibling caregiving. The purpose of this study was to understand the relation between the severity of the disability (defined as functional ability and maladaptive behaviors) and sibling caregiving, including advocacy and future planning. Adult siblings of older individuals with disabilities (N = 141) completed a national survey. Results indicated that individuals with less functional ability were significantly more likely to receive greater sibling caregiving, advocacy, and future planning. There was a nonlinear relation with respect to sibling caregiving and functional ability with individuals with severe disabilities requiring disproportionately greater sibling caregiving. Furthermore, there was a nonlinear relation between maladaptive behaviors and caregiving demands such that siblings of individuals with the greatest asocial behaviors reported significantly greater caregiving demands.
| Original language | English (US) |
|---|---|
| Pages (from-to) | 224-236 |
| Number of pages | 13 |
| Journal | Research and Practice for Persons with Severe Disabilities |
| Volume | 44 |
| Issue number | 4 |
| DOIs | |
| State | Published - Dec 1 2019 |
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Keywords
- functional ability
- maladaptive behaviors
- severe disabilities
- sibling caregiving
ASJC Scopus subject areas
- Social Psychology
- Health Professions(all)
- Public Health, Environmental and Occupational Health
Cite this
Examining the Relation Between Disability Severity Among Older Adults with Disabilities and Sibling Caregiving. / Lee, Chung eun; Burke, Meghan M.; Arnold, Catherine K.
In: Research and Practice for Persons with Severe Disabilities, Vol. 44, No. 4, 01.12.2019, p. 224-236.Research output: Contribution to journal › Article
}
TY - JOUR
T1 - Examining the Relation Between Disability Severity Among Older Adults with Disabilities and Sibling Caregiving
AU - Lee, Chung eun
AU - Burke, Meghan M.
AU - Arnold, Catherine K.
PY - 2019/12/1
Y1 - 2019/12/1
N2 - Given the longer lives of individuals with disabilities and the increasing likelihood of siblings fulfilling family caregiving roles, it is critical to identify correlates of sibling caregiving. Yet, little research has examined the relation between the severity of the disability and sibling caregiving. The purpose of this study was to understand the relation between the severity of the disability (defined as functional ability and maladaptive behaviors) and sibling caregiving, including advocacy and future planning. Adult siblings of older individuals with disabilities (N = 141) completed a national survey. Results indicated that individuals with less functional ability were significantly more likely to receive greater sibling caregiving, advocacy, and future planning. There was a nonlinear relation with respect to sibling caregiving and functional ability with individuals with severe disabilities requiring disproportionately greater sibling caregiving. Furthermore, there was a nonlinear relation between maladaptive behaviors and caregiving demands such that siblings of individuals with the greatest asocial behaviors reported significantly greater caregiving demands.
AB - Given the longer lives of individuals with disabilities and the increasing likelihood of siblings fulfilling family caregiving roles, it is critical to identify correlates of sibling caregiving. Yet, little research has examined the relation between the severity of the disability and sibling caregiving. The purpose of this study was to understand the relation between the severity of the disability (defined as functional ability and maladaptive behaviors) and sibling caregiving, including advocacy and future planning. Adult siblings of older individuals with disabilities (N = 141) completed a national survey. Results indicated that individuals with less functional ability were significantly more likely to receive greater sibling caregiving, advocacy, and future planning. There was a nonlinear relation with respect to sibling caregiving and functional ability with individuals with severe disabilities requiring disproportionately greater sibling caregiving. Furthermore, there was a nonlinear relation between maladaptive behaviors and caregiving demands such that siblings of individuals with the greatest asocial behaviors reported significantly greater caregiving demands.
KW - functional ability
KW - maladaptive behaviors
KW - severe disabilities
KW - sibling caregiving
UR - http://www.scopus.com/inward/record.url?scp=85074053760&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=85074053760&partnerID=8YFLogxK
U2 - 10.1177/1540796919879102
DO - 10.1177/1540796919879102
M3 - Article
AN - SCOPUS:85074053760
VL - 44
SP - 224
EP - 236
JO - Research and Practice for Persons with Severe Disabilities
JF - Research and Practice for Persons with Severe Disabilities
SN - 1540-7969
IS - 4
ER -