TY - JOUR
T1 - Examining the Relation Between Disability Severity Among Older Adults with Disabilities and Sibling Caregiving
AU - Lee, Chung eun
AU - Burke, Meghan M.
AU - Arnold, Catherine K.
N1 - https://orcid.org/0000-0001-8360-5985 Lee Chung eun 1 Burke Meghan M. 2 Arnold Catherine K. 3 1 Vanderbilt University Medical Center, Nashville, TN, USA 2 University of Illinois at Urbana–Champaign, USA 3 The University of Illinois at Chicago, USA Chung eun Lee, Vanderbilt University Medical Center, 110 Magnolia Circle, Nashville, TN 37203, USA. Email: [email protected] 10 2019 1540796919879102 23 8 2019 9 9 2019 © The Author(s) 2019 2019 TASH Given the longer lives of individuals with disabilities and the increasing likelihood of siblings fulfilling family caregiving roles, it is critical to identify correlates of sibling caregiving. Yet, little research has examined the relation between the severity of the disability and sibling caregiving. The purpose of this study was to understand the relation between the severity of the disability (defined as functional ability and maladaptive behaviors) and sibling caregiving, including advocacy and future planning. Adult siblings of older individuals with disabilities ( N = 141) completed a national survey. Results indicated that individuals with less functional ability were significantly more likely to receive greater sibling caregiving, advocacy, and future planning. There was a nonlinear relation with respect to sibling caregiving and functional ability with individuals with severe disabilities requiring disproportionately greater sibling caregiving. Furthermore, there was a nonlinear relation between maladaptive behaviors and caregiving demands such that siblings of individuals with the greatest asocial behaviors reported significantly greater caregiving demands. sibling caregiving maladaptive behaviors functional ability severe disabilities edited-state corrected-proof Editor in Charge: Stacy K. Dymond and K. Charlie Lakin Declaration of Conflicting Interests The author(s) declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article. Funding The author(s) disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: Funding for this study was provided from the Texas Developmental Disabilities Council. However, the manuscript solely reflects the opinions of the authors and not the funding agency. ORCID iD Chung eun Lee https://orcid.org/0000-0001-8360-5985
PY - 2019/12/1
Y1 - 2019/12/1
N2 - Given the longer lives of individuals with disabilities and the increasing likelihood of siblings fulfilling family caregiving roles, it is critical to identify correlates of sibling caregiving. Yet, little research has examined the relation between the severity of the disability and sibling caregiving. The purpose of this study was to understand the relation between the severity of the disability (defined as functional ability and maladaptive behaviors) and sibling caregiving, including advocacy and future planning. Adult siblings of older individuals with disabilities (N = 141) completed a national survey. Results indicated that individuals with less functional ability were significantly more likely to receive greater sibling caregiving, advocacy, and future planning. There was a nonlinear relation with respect to sibling caregiving and functional ability with individuals with severe disabilities requiring disproportionately greater sibling caregiving. Furthermore, there was a nonlinear relation between maladaptive behaviors and caregiving demands such that siblings of individuals with the greatest asocial behaviors reported significantly greater caregiving demands.
AB - Given the longer lives of individuals with disabilities and the increasing likelihood of siblings fulfilling family caregiving roles, it is critical to identify correlates of sibling caregiving. Yet, little research has examined the relation between the severity of the disability and sibling caregiving. The purpose of this study was to understand the relation between the severity of the disability (defined as functional ability and maladaptive behaviors) and sibling caregiving, including advocacy and future planning. Adult siblings of older individuals with disabilities (N = 141) completed a national survey. Results indicated that individuals with less functional ability were significantly more likely to receive greater sibling caregiving, advocacy, and future planning. There was a nonlinear relation with respect to sibling caregiving and functional ability with individuals with severe disabilities requiring disproportionately greater sibling caregiving. Furthermore, there was a nonlinear relation between maladaptive behaviors and caregiving demands such that siblings of individuals with the greatest asocial behaviors reported significantly greater caregiving demands.
KW - functional ability
KW - maladaptive behaviors
KW - severe disabilities
KW - sibling caregiving
UR - http://www.scopus.com/inward/record.url?scp=85074053760&partnerID=8YFLogxK
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U2 - 10.1177/1540796919879102
DO - 10.1177/1540796919879102
M3 - Article
AN - SCOPUS:85074053760
SN - 1540-7969
VL - 44
SP - 224
EP - 236
JO - Research and Practice for Persons with Severe Disabilities
JF - Research and Practice for Persons with Severe Disabilities
IS - 4
ER -