Disparities in Unmet Service Needs Among Adults with Intellectual and Other Developmental Disabilities

Meghan Maureen Burke, Tamar Heller

Research output: Contribution to journalArticle

Abstract

Background: Due to long waiting lists for services, many adults with intellectual and developmental disabilities in the United States have unmet service needs. Little research, however, has identified the characteristics of caregivers and individuals with intellectual and developmental disabilities that relate to the unmet service needs among individuals who are waiting for services. Method: The present authors conducted a statewide mail survey of 234 caregivers of individuals with intellectual and developmental disabilities who were waiting for services. The present authors identified which parent and individual with intellectual and developmental disability characteristics were significantly associated with the number of unmet service needs. Results: Individuals with intellectual and developmental disabilities who were in poor health, from minority backgrounds and non-verbal were significantly more likely to have a greater number of unmet service needs. Additionally, individuals with younger caregivers and individuals with caregivers from low-income backgrounds were significantly more likely to report a greater number of unmet service needs. Discussion: Implications for research and policy are discussed.

Original languageEnglish (US)
Pages (from-to)898-910
Number of pages13
JournalJournal of Applied Research in Intellectual Disabilities
Volume30
Issue number5
DOIs
StatePublished - Sep 2017

Fingerprint

Developmental Disabilities
Intellectual Disability
disability
Caregivers
caregiver
Minority Health
Waiting Lists
Postal Service
Research
mail survey
parents
low income
minority
health

Keywords

  • developmental disability
  • disparities
  • intellectual disability
  • services

ASJC Scopus subject areas

  • Education
  • Developmental and Educational Psychology

Cite this

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