TY - JOUR
T1 - Development, Feasibility, and Acceptability of a Nationally Relevant Parent Training to Improve Service Access During the Transition to Adulthood for Youth with ASD
AU - Taylor, Julie Lounds
AU - Pezzimenti, Florencia
AU - Burke, Meghan M.
AU - DaWalt, Leann Smith
AU - Lee, Chung eun
AU - Rabideau, Carol
N1 - Funding Information:
Chung eun Lee is now at Chonnam National University. This research was supported by the National Institute of Mental Health (R01 MH116058, PI: Taylor), the Vanderbilt Kennedy Center for Excellence in Developmental Disabilities, and The Autism Project of Illinois, with core support from the National Institute of Child Health and Human Development (P50 HD103537, PI: Neul; U54 HD090256, PI: Chang) and the National Center for Advancing Translational Sciences (UL1 TR000445). We are grateful for the support of our community partners during the development and implementation of ASSIST including ASSIST group facilitators (Patty Boheme, Ashley Coulter, Jennifer Espinoza-Forlenza, Carrie Guiden, Loria Hubbard, Linda Totorelli) and the many local experts who lent their time and expertise to the program. We also would like to express our gratitude to the parent volunteers who served as video “hosts” (Linda Brown, Ann Curl, Janet Shouse, John Shouse), and the families who volunteered their time to participate in the project.
Funding Information:
Chung eun Lee is now at Chonnam National University. This research was supported by the National Institute of Mental Health (R01 MH116058, PI: Taylor), the Vanderbilt Kennedy Center for Excellence in Developmental Disabilities, and The Autism Project of Illinois, with core support from the National Institute of Child Health and Human Development (P50 HD103537, PI: Neul; U54 HD090256, PI: Chang) and the National Center for Advancing Translational Sciences (UL1 TR000445). We are grateful for the support of our community partners during the development and implementation of ASSIST including ASSIST group facilitators (Patty Boheme, Ashley Coulter, Jennifer Espinoza-Forlenza, Carrie Guiden, Loria Hubbard, Linda Totorelli) and the many local experts who lent their time and expertise to the program. We also would like to express our gratitude to the parent volunteers who served as video “hosts” (Linda Brown, Ann Curl, Janet Shouse, John Shouse), and the families who volunteered their time to participate in the project.
Publisher Copyright:
© 2021, The Author(s), under exclusive licence to Springer Science+Business Media, LLC, part of Springer Nature.
PY - 2022/6
Y1 - 2022/6
N2 - Many youth with autism spectrum disorder (ASD) face challenges accessing needed services as they transition to adulthood. The present study describes the development, feasibility and acceptability of a new intervention designed to teach parents of transition-aged youth with ASD about the adult service system and the most effective ways to access services and supports. As part of a randomized-controlled trial, the intervention—named ASSIST—was delivered to 91 participants in three states in the U.S. Results suggested that ASSIST is feasible and acceptable to participants. Though intended to be an in-person group-based program, due to COVID-19 restrictions ASSIST was primarily delivered online. Results and discussion explore the trade-offs and implications of these different treatment delivery modalities in relation to ASSIST.
AB - Many youth with autism spectrum disorder (ASD) face challenges accessing needed services as they transition to adulthood. The present study describes the development, feasibility and acceptability of a new intervention designed to teach parents of transition-aged youth with ASD about the adult service system and the most effective ways to access services and supports. As part of a randomized-controlled trial, the intervention—named ASSIST—was delivered to 91 participants in three states in the U.S. Results suggested that ASSIST is feasible and acceptable to participants. Though intended to be an in-person group-based program, due to COVID-19 restrictions ASSIST was primarily delivered online. Results and discussion explore the trade-offs and implications of these different treatment delivery modalities in relation to ASSIST.
KW - Autism spectrum disorder
KW - Families
KW - Intervention
KW - Services
KW - Transition to adulthood
UR - http://www.scopus.com/inward/record.url?scp=85107917999&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=85107917999&partnerID=8YFLogxK
U2 - 10.1007/s10803-021-05128-z
DO - 10.1007/s10803-021-05128-z
M3 - Article
C2 - 34232419
AN - SCOPUS:85107917999
SN - 0162-3257
VL - 52
SP - 2388
EP - 2399
JO - Journal of Autism and Developmental Disorders
JF - Journal of Autism and Developmental Disorders
IS - 6
ER -