TY - JOUR
T1 - Development and Validation of the Physical Disability Identity Scale
T2 - A Multistudy Quantitative Investigation With Participant Feedback
AU - Rule, Payton D.
AU - Ratner, Kaylin
AU - Willroth, Emily C.
AU - Hill, Patrick L.
N1 - This work was supported by the National Institute on Aging (R00AG 071838-S1). This work was also supported by the National Institutes of Health (P30AG066444)Research Education Component. The content is solely the responsibility of the authors and does not represent the official views of the National Institutes of Health. This material is based upon work supported by the National Science Foundation\u2019s Graduate Research Fellowship Program (Grant DGE 2139839). Any opinions, findings, and conclusions or recommendations expressed in this material are those of the authors and do not necessarily reflect the views of the National Science Foundation. We have no conflicts of interest to declare.We wish to provide information about our backgrounds and identities that may have influenced our approach to conducting this research. First, two of the authors, including Payton D. Rule, identify as disabled women. Payton D. Rule identifies as having a mobility disability and the other identifies as having an autoimmune disorder. While we believe that our lived experiences with disability provided valuable insight to this work, we also acknowledge that our experiencesmay not reflect the lived experiences of our participants. Apart fromsome members of the research teamidentifying as disabled, we hold many privileged circumstances and identities. For instance, two authors identify as nondisabled, and one author\u2019s disability is concealable. Furthermore, all authors identify as non-Hispanic,White, and cisgender. While we come from a range of career stages and socioeconomic/ family backgrounds, we are researchers at highly resourced universities with flexibility and access to accommodations that many disabled people do not have access to. In order to ensure that our work captured the lived experience of our (much more diverse) participants, we solicited review and feedback on the development of scale items and considered this feedback carefully in establishing the final version (see theMethod and Results sections in Study 1 section for more detail).However, whether conscious or not, the aspects of whowe are that we reviewed above may have shaped our interpretation of participant feedback.
PY - 2025/2/13
Y1 - 2025/2/13
N2 - Purpose/Objective: Disability has traditionally been viewed as a deficit in psychology research; however, accruing work suggests that viewing disability as an identity may be protective for mental health and wellbeing among disabled individuals. Therefore, developing disability identity measures that comprehensively capture this view of disability as an identity is an important step for promoting disabled individuals’ flourishing. ResearchMethod/Design: To address this,we conducted two studies aimed at developing and validating a new scale to measure physical disability identity among adults with physical disability. In Study 1 (N= 104), we solicited feedback on our new scale from adults with physical disabilities and revised our scale to ensure that it captured their lived experiences. In Study 2 (N=296), we tested the factor structure of the new Physical Disability Identity Scale. All datawere collected in 2023. Results:Most participants reported that our scalewas easy to comprehend and comprehensively captured their lived experiences.We found evidence for a six-factor structure of the new Physical Disability Identity Scale, which assessed the following dimensions: Connection, Satisfaction, Centrality, Openness, Individual Self-Stereotyping, and Disability Lens. In addition, results suggested that Connection, Satisfaction, and Openness were adaptively related to well-being and health, whereas Centrality, Individual Self-Stereotyping, and Disability Lens were mostly adversely related to well-being and health. Conclusion/Implications: This research suggests that our Physical Disability Identity Scale is valid among adultswith physical disabilities and that physical disability identity dimensions may be valuable to consider in future work on well-being and health among individuals with physical disabilities.
AB - Purpose/Objective: Disability has traditionally been viewed as a deficit in psychology research; however, accruing work suggests that viewing disability as an identity may be protective for mental health and wellbeing among disabled individuals. Therefore, developing disability identity measures that comprehensively capture this view of disability as an identity is an important step for promoting disabled individuals’ flourishing. ResearchMethod/Design: To address this,we conducted two studies aimed at developing and validating a new scale to measure physical disability identity among adults with physical disability. In Study 1 (N= 104), we solicited feedback on our new scale from adults with physical disabilities and revised our scale to ensure that it captured their lived experiences. In Study 2 (N=296), we tested the factor structure of the new Physical Disability Identity Scale. All datawere collected in 2023. Results:Most participants reported that our scalewas easy to comprehend and comprehensively captured their lived experiences.We found evidence for a six-factor structure of the new Physical Disability Identity Scale, which assessed the following dimensions: Connection, Satisfaction, Centrality, Openness, Individual Self-Stereotyping, and Disability Lens. In addition, results suggested that Connection, Satisfaction, and Openness were adaptively related to well-being and health, whereas Centrality, Individual Self-Stereotyping, and Disability Lens were mostly adversely related to well-being and health. Conclusion/Implications: This research suggests that our Physical Disability Identity Scale is valid among adultswith physical disabilities and that physical disability identity dimensions may be valuable to consider in future work on well-being and health among individuals with physical disabilities.
KW - disability
KW - identity
KW - scale development
KW - well-being
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UR - http://www.scopus.com/inward/citedby.url?scp=85218723713&partnerID=8YFLogxK
U2 - 10.1037/rep0000606
DO - 10.1037/rep0000606
M3 - Article
C2 - 39946623
AN - SCOPUS:85218723713
SN - 0090-5550
JO - Rehabilitation Psychology
JF - Rehabilitation Psychology
ER -