Comparing differences in support needs as perceived by parents of adult offspring with down syndrome, autism spectrum disorder and cerebral palsy

Chung eun Lee, Meghan Maureen Burke, Catherine K. Arnold, Aleksa Owen

Research output: Contribution to journalArticle

Abstract

Background: Parents often face many barriers when taking care of their offspring with disabilities. In childhood, support needs vary with families of children with Down syndrome often reporting less caregiving challenges. However, it is unclear whether support needs vary in adulthood. This study compared parents of adults with Down syndrome (DS), autism spectrum disorder (ASD) and cerebral palsy (CP) regarding support needs of their offspring with intellectual and developmental disabilities (IDD) and their families. Method: Data were collected via a national survey in the United States with 189 parents of adults with IDD. Results: Across the quantitative and qualitative analyses, parents of adults with DS (versus CP and ASD) reported significantly greater recreational, natural supports, more formal services and less future planning barriers. Conclusion: The results indicate that the DS advantage may persist in adulthood regarding support needs. More research is needed to understand different types of support needs.

Original languageEnglish (US)
Pages (from-to)194-205
Number of pages12
JournalJournal of Applied Research in Intellectual Disabilities
Volume32
Issue number1
DOIs
StatePublished - Jan 2019

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Down Syndrome
Adult Children
Cerebral Palsy
autism
parents
Parents
Developmental Disabilities
Intellectual Disability
disability
adulthood
caregiving
childhood
Autism Spectrum Disorder
Research
planning

ASJC Scopus subject areas

  • Education
  • Developmental and Educational Psychology

Cite this

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