TY - JOUR
T1 - Children with Autism Spectrum Disorders in Low-Resource Settings
T2 - Reported Experiences and Needs of Parents in Mongolia
AU - Lee, James D.
AU - Meadan, Hedda
N1 - Funding Information:
There was no funding for this study. We express our sincere gratitude to Mongolian parents who shared their lives with us, and the Autism Association of Mongolia for its logistical assistance across all aspects of this study.
Publisher Copyright:
© 2021, The Author(s), under exclusive licence to Springer Science+Business Media, LLC part of Springer Nature.
PY - 2021/10
Y1 - 2021/10
N2 - Although it is well-documented that families of children with autism in developed nations report hardships, few researchers have focused on families who live in less-developed, low-resource settings. Using five focus groups with 30 parents of children with autism in Mongolia, a low- resource setting, the purpose of this study was to provide detailed accounts of their experiences, challenges, and needs. Participants reported severe challenges related to raising their children with autism in their country. Parents shared barriers related to the limited availability of services and support, exacerbated financial burdens, and a lack of enforcement of relevant laws. Parents also shared their perceived needs including more services for their children, more sustainable training and coaching programs for parents, and parents’ collective advocacy.
AB - Although it is well-documented that families of children with autism in developed nations report hardships, few researchers have focused on families who live in less-developed, low-resource settings. Using five focus groups with 30 parents of children with autism in Mongolia, a low- resource setting, the purpose of this study was to provide detailed accounts of their experiences, challenges, and needs. Participants reported severe challenges related to raising their children with autism in their country. Parents shared barriers related to the limited availability of services and support, exacerbated financial burdens, and a lack of enforcement of relevant laws. Parents also shared their perceived needs including more services for their children, more sustainable training and coaching programs for parents, and parents’ collective advocacy.
KW - Children with autism
KW - Low-resource settings
KW - Parent perceptions
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U2 - 10.1007/s10803-020-04818-4
DO - 10.1007/s10803-020-04818-4
M3 - Article
C2 - 33387240
AN - SCOPUS:85098487554
SN - 0162-3257
VL - 51
SP - 3586
EP - 3599
JO - Journal of Autism and Developmental Disorders
JF - Journal of Autism and Developmental Disorders
IS - 10
ER -