Caregiving Roles of Siblings of Adults With Intellectual and Developmental Disabilities: A Systematic Review

Chung eun Lee, Meghan Maureen Burke

Research output: Contribution to journalArticle

Abstract

As individuals with intellectual and developmental disabilities (I/DD) grow older, many siblings anticipate becoming caregivers for their brothers and sisters with I/DD. However, there is little extant research about the caregiving roles of siblings. The purpose of this review was to extend the literature by conducting a systematic literature review about sibling caregiving. To better understand this population, a systematic literature review was conducted about adult siblings of individuals with I/DD to examine the definition of caregiving, sibling caregiving experiences, and correlates of sibling caregiving. In total, 29 relevant studies were identified. Results indicate that there is no consistent definition of sibling caregiving. Further, adult sibling caregivers reported caregiving benefits and challenges. The literature is also mixed with respect to the correlates of sibling caregiving. It is necessary to conduct additional research to understand sibling caregiving for individuals with I/DD. Implications for future research, policy, and practice are discussed.

Original languageEnglish (US)
Pages (from-to)237-246
Number of pages10
JournalJournal of Policy and Practice in Intellectual Disabilities
Volume15
Issue number3
DOIs
StatePublished - Sep 2018

Fingerprint

Developmental Disabilities
caregiving
Intellectual Disability
Siblings
disability
caregiver
Caregivers
Research

Keywords

  • adult siblings
  • caregiving
  • future planning
  • intellectual disabilities
  • sibling roles

ASJC Scopus subject areas

  • Health(social science)
  • Public Health, Environmental and Occupational Health

Cite this

@article{6310d216dd2440df986007ba7c09c822,
title = "Caregiving Roles of Siblings of Adults With Intellectual and Developmental Disabilities: A Systematic Review",
abstract = "As individuals with intellectual and developmental disabilities (I/DD) grow older, many siblings anticipate becoming caregivers for their brothers and sisters with I/DD. However, there is little extant research about the caregiving roles of siblings. The purpose of this review was to extend the literature by conducting a systematic literature review about sibling caregiving. To better understand this population, a systematic literature review was conducted about adult siblings of individuals with I/DD to examine the definition of caregiving, sibling caregiving experiences, and correlates of sibling caregiving. In total, 29 relevant studies were identified. Results indicate that there is no consistent definition of sibling caregiving. Further, adult sibling caregivers reported caregiving benefits and challenges. The literature is also mixed with respect to the correlates of sibling caregiving. It is necessary to conduct additional research to understand sibling caregiving for individuals with I/DD. Implications for future research, policy, and practice are discussed.",
keywords = "adult siblings, caregiving, future planning, intellectual disabilities, sibling roles",
author = "Lee, {Chung eun} and Burke, {Meghan Maureen}",
year = "2018",
month = "9",
doi = "10.1111/jppi.12246",
language = "English (US)",
volume = "15",
pages = "237--246",
journal = "Journal of Policy and Practice in Intellectual Disabilities",
issn = "1741-1122",
publisher = "Wiley-Blackwell",
number = "3",

}

TY - JOUR

T1 - Caregiving Roles of Siblings of Adults With Intellectual and Developmental Disabilities

T2 - A Systematic Review

AU - Lee, Chung eun

AU - Burke, Meghan Maureen

PY - 2018/9

Y1 - 2018/9

N2 - As individuals with intellectual and developmental disabilities (I/DD) grow older, many siblings anticipate becoming caregivers for their brothers and sisters with I/DD. However, there is little extant research about the caregiving roles of siblings. The purpose of this review was to extend the literature by conducting a systematic literature review about sibling caregiving. To better understand this population, a systematic literature review was conducted about adult siblings of individuals with I/DD to examine the definition of caregiving, sibling caregiving experiences, and correlates of sibling caregiving. In total, 29 relevant studies were identified. Results indicate that there is no consistent definition of sibling caregiving. Further, adult sibling caregivers reported caregiving benefits and challenges. The literature is also mixed with respect to the correlates of sibling caregiving. It is necessary to conduct additional research to understand sibling caregiving for individuals with I/DD. Implications for future research, policy, and practice are discussed.

AB - As individuals with intellectual and developmental disabilities (I/DD) grow older, many siblings anticipate becoming caregivers for their brothers and sisters with I/DD. However, there is little extant research about the caregiving roles of siblings. The purpose of this review was to extend the literature by conducting a systematic literature review about sibling caregiving. To better understand this population, a systematic literature review was conducted about adult siblings of individuals with I/DD to examine the definition of caregiving, sibling caregiving experiences, and correlates of sibling caregiving. In total, 29 relevant studies were identified. Results indicate that there is no consistent definition of sibling caregiving. Further, adult sibling caregivers reported caregiving benefits and challenges. The literature is also mixed with respect to the correlates of sibling caregiving. It is necessary to conduct additional research to understand sibling caregiving for individuals with I/DD. Implications for future research, policy, and practice are discussed.

KW - adult siblings

KW - caregiving

KW - future planning

KW - intellectual disabilities

KW - sibling roles

UR - http://www.scopus.com/inward/record.url?scp=85052948707&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=85052948707&partnerID=8YFLogxK

U2 - 10.1111/jppi.12246

DO - 10.1111/jppi.12246

M3 - Article

AN - SCOPUS:85052948707

VL - 15

SP - 237

EP - 246

JO - Journal of Policy and Practice in Intellectual Disabilities

JF - Journal of Policy and Practice in Intellectual Disabilities

SN - 1741-1122

IS - 3

ER -