TY - JOUR
T1 - At home with disability
T2 - One family's three generations narrate autism
AU - Mouzourou, Chryso
AU - Santos, Rosa Milagros
AU - Gaffney, Janet S.
PY - 2011/11
Y1 - 2011/11
N2 - We examined the lived experiences of a Cypriot family with a young child with autism. Semi-structured interviews with parents, siblings, and extended family members across three generations and observations of the family's daily activities were the primary data-generating methods. Critical events related to the disability diagnosis, the mother's decision to undertake a significant role in the child's education following negative interactions with professionals, and the family's daily accommodations to the child's needs emerged in narratives of multiple participants. Family narratives reflect the polyphony of experiences and responses shared by participants. The study illuminates the complexities of this experience and offers opportunities to rethink the interplay of disability, family, and culture in the context of research and practice.
AB - We examined the lived experiences of a Cypriot family with a young child with autism. Semi-structured interviews with parents, siblings, and extended family members across three generations and observations of the family's daily activities were the primary data-generating methods. Critical events related to the disability diagnosis, the mother's decision to undertake a significant role in the child's education following negative interactions with professionals, and the family's daily accommodations to the child's needs emerged in narratives of multiple participants. Family narratives reflect the polyphony of experiences and responses shared by participants. The study illuminates the complexities of this experience and offers opportunities to rethink the interplay of disability, family, and culture in the context of research and practice.
KW - cultural diversity
KW - disability
KW - family narratives
KW - qualitative case study
UR - http://www.scopus.com/inward/record.url?scp=84858822948&partnerID=8YFLogxK
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U2 - 10.1080/09518398.2010.529841
DO - 10.1080/09518398.2010.529841
M3 - Article
AN - SCOPUS:84858822948
SN - 0951-8398
VL - 24
SP - 693
EP - 715
JO - International Journal of Qualitative Studies in Education
JF - International Journal of Qualitative Studies in Education
IS - 6
ER -