@article{7d21091a911e4ee696710e79bc1ca3e8,
title = "An Opportunity for Constructing the Future of Data Sharing in Otolaryngology",
author = "Eckert, {Mark A.} and Husain, {Fatima T.} and {M.P. Jayakody}, Dona and Winfried Schlee and Cederroth, {Christopher R.}",
note = "Funding Information: Institutions place high value on data generated within its infrastructure and thus there can be conflict between open data access and institutional priorities. At least for institutions competing for funding from the National Institutes of Health, it seems likely that new data sharing requirements will guide the development of institution-specific data sharing infrastructures, thereby allowing researchers to be compliant with data sharing requirements, while maintaining intellectual property for the institution. This scenario may require a federated database system (FDS) that stores meta-data describing the data available across institutional repositories. Here, researchers would search the FDS to identify data of interest and to determine where that data is housed. There may be an opportunity for professional associations like ARO, of course with commitment from association members and an investment in the necessary infrastructure, to establish an FDS. The benefit to members and the broader community is the relatively rapid access to multi-site data for hypothesis driven and discovery research, education, and establishing collaboration. This type of resource would allow for historical record of research in the field and could be used to track or identify new research directions. That is, an FDS effectively becomes a domain-specific search engine for research materials that allows for detailed understanding of a field at different scales of resolution that can advance member research, allow for data sharing policy compliance, provide a mechanism to index data used for JARO publications, and perhaps raise the profile of the association and value to members. ",
year = "2023",
month = aug,
doi = "10.1007/s10162-023-00908-z",
language = "English (US)",
volume = "24",
pages = "397--399",
journal = "JARO - Journal of the Association for Research in Otolaryngology",
issn = "1525-3961",
publisher = "Springer New York",
number = "4",
}