A Review of Supports and Services for Adults With Intellectual and Developmental Disabilities (IDD) and Their Families in the United States: Past and Present Contexts Impacting Future Research, Practice and Policy

Meghan M. Burke, Amie Lulinski, Jennifer Jones, Kami Gallus

Research output: Chapter in Book/Report/Conference proceedingChapter

Abstract

Given the important roles of family caregivers and the likelihood that individuals with IDD will live in their family homes into adulthood, it is crucial to examine adult service delivery systems within the context of families of individuals with IDD. In this manuscript, we aim to describe the adult service delivery system, specifically with respect to HCBS Medicaid waiver in the United States, and its relation to the contexts and implications of family caregivers for adults with IDD. We begin by providing a history of adult services; then, we shift our focus to community-based support. Next, we discuss the theoretical framework, Family Systems Theory. Then, we describe the contexts and implications of family caregivers. We conclude with directions for future research, practice, and policy. Because this manuscript highlights the complicated nature of adult services, we provide a description and list of the relevant acronyms in Table 1.

Original languageEnglish (US)
Title of host publicationInternational Review of Research in Developmental Disabilities
EditorsMeghan M. Burke
PublisherAcademic Press Inc.
Pages137-176
Number of pages40
ISBN (Print)9780128150917
DOIs
StatePublished - Jan 1 2018

Publication series

NameInternational Review of Research in Developmental Disabilities
Volume54
ISSN (Print)2211-6095

Keywords

  • Caregiver
  • Disability
  • Family support
  • Parent
  • Policy

ASJC Scopus subject areas

  • Developmental and Educational Psychology
  • Psychiatry and Mental health

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