A Pilot Study of a Future Planning Program for Siblings of People With Intellectual and Developmental Disabilities

Chung E. Lee, Meghan M. Burke

Research output: Contribution to journalArticlepeer-review

Abstract

Given the increased longevity of people with intellectual and developmental disabilities (IDD), future planning programs are becoming increasingly common. However, although siblings are likely to fulfill caregiving roles for people with IDD, siblings have not been included in future planning interventions. The purpose of this study was to evaluate the outcomes and feasibility of the Sibling Training for Early future Planning (STEP) program. Using quantitative and qualitative data, 18 siblings of individuals with IDD participated in the study. After completing the STEP program, participants demonstrated significantly improved feelings of empowerment, disability connectedness, family communication, and knowledge of adult disability services. The STEP program was also feasible given high attendance, low attrition rates, and high participant satisfaction. Implications for research and practice are discussed.

Original languageEnglish (US)
Pages (from-to)70-83
Number of pages14
JournalIntellectual and developmental disabilities
Volume59
Issue number1
DOIs
StatePublished - Feb 1 2021

Keywords

  • family intervention
  • future planning
  • intellectual and developmental disabilities
  • sibling

ASJC Scopus subject areas

  • Pediatrics, Perinatology, and Child Health
  • Education
  • Developmental and Educational Psychology
  • Community and Home Care
  • Psychiatry and Mental health

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