A framework for enhancing ethical genomic research with Indigenous communities

Summer internship for INdigenous peoples in Genomics (SING) Consortium

Research output: Contribution to journalReview article

Abstract

Integration of genomic technology into healthcare settings establishes new capabilities to predict disease susceptibility and optimize treatment regimes. Yet, Indigenous peoples remain starkly underrepresented in genetic and clinical health research and are unlikely to benefit from such efforts. To foster collaboration with Indigenous communities, we propose six principles for ethical engagement in genomic research: understand existing regulations, foster collaboration, build cultural competency, improve research transparency, support capacity building, and disseminate research findings. Inclusion of underrepresented communities in genomic research has the potential to expand our understanding of genomic influences on health and improve clinical approaches for all populations.

Original languageEnglish (US)
Article number2957
JournalNature communications
Volume9
Issue number1
DOIs
StatePublished - Dec 1 2018

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health
Research
inclusions
magnetic permeability
Health
Cultural Competency
Capacity Building
Metagenomics
Disease Susceptibility
Transparency
Technology
Delivery of Health Care
Population

ASJC Scopus subject areas

  • Chemistry(all)
  • Biochemistry, Genetics and Molecular Biology(all)
  • Physics and Astronomy(all)

Cite this

Summer internship for INdigenous peoples in Genomics (SING) Consortium (2018). A framework for enhancing ethical genomic research with Indigenous communities. Nature communications, 9(1), [2957]. https://doi.org/10.1038/s41467-018-05188-3

A framework for enhancing ethical genomic research with Indigenous communities. / Summer internship for INdigenous peoples in Genomics (SING) Consortium.

In: Nature communications, Vol. 9, No. 1, 2957, 01.12.2018.

Research output: Contribution to journalReview article

Summer internship for INdigenous peoples in Genomics (SING) Consortium 2018, 'A framework for enhancing ethical genomic research with Indigenous communities', Nature communications, vol. 9, no. 1, 2957. https://doi.org/10.1038/s41467-018-05188-3
Summer internship for INdigenous peoples in Genomics (SING) Consortium. A framework for enhancing ethical genomic research with Indigenous communities. Nature communications. 2018 Dec 1;9(1). 2957. https://doi.org/10.1038/s41467-018-05188-3
Summer internship for INdigenous peoples in Genomics (SING) Consortium. / A framework for enhancing ethical genomic research with Indigenous communities. In: Nature communications. 2018 ; Vol. 9, No. 1.
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